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Shine like a star

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She may not have starred in a movie or on a teleserye but Congresswoman Emmeline Y. Aglipay-Villar inspires like a celebrity through her Hope For Lupus Foundation Inc. which has organized a fun run for a cause on Jan. 21 at the SM Mall of Asia.

Proceeds from the activity will be used for the treatment of indigent patients of the foundation. There will be a 5 km, 10 km and 21 km divisions. A special km-long run is there for the sick who have doctor’s clearance to join. Interested parties can register at select GNC stores.

In February, Emmeline will hold a seminar for lupus patients, wherein do’s and don’ts about food intake will be explained. The conference is in coordination with nutritionists and dietitians.

Her ongoing seminars still on lupus are for health workers of different barangays.

MARK VILLAR and wife Emmeline Aglipay Villar with their daughter Emma Therese

MARK VILLAR and wife Emmeline Aglipay
Villar with their daughter Emma Therese

“Importante na alam ng mga barangay workers kung ano ’yung mga symptoms para agad-agaran na ma-inform nila sa Rheumatologist. Madalas kasi hindi na da-diagnose ng tama kaya ’yun pa ’yung nakakadulot ng paglala ng sakit,” said she, herself, a lupus patient. “To have someone to talk to who understand what they are going to and to actually meet someone with the same sickness is really important.”

Emmeline’s book titled “Living Better With Lupus” will have a Tagalog version to be given for free to residents of provinces and rural areas. It will likely be out by May.

“The book is doing very good,” she said. “I was happily surprised that it’s been received very well by the medical community and also by the patients.”

In fact, she added that a lot of doctors are ordering directly from her foundation, Hope For Lupus Foundation Inc. Apparently, the practitioners want to have such books in their clinic so that patients can directly buy there instead of going to bookstores.

The “Living Better With Lupus” is a comprehensive guide to help lupus patients and their families understand better and cope with the life-threatening disease. It was co-written by Dr. Evelyn Osio-Salido, Dr. Geraldine Zamora and Dr. Angeline Magbitang-Santiago.

Emmeline discovered she has lupus 10 years ago. That she wouldn’t want other people to experience the same things as her. Good thing her husband Department of Public Works and Highways secretary Mark Villar is always there to take good care of her. They have a two-year-old daughter, Emma Therese.

“Walang cure ang lupus. I’m going to live with it,” she bravely said.

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